6.5K views · 429 reactions | When Amelia was diagnosed with CNL2...
0:17
6.5K views · 429 reactions | When Amelia was diagnosed with CNL2...
6.6K views1 week ago
FacebookOllie's Army Battling Against Battens
A new children's book is helping families talk about rare, fatal Batten disease
A new children's book is helping families talk about rare, fatal Batte…
Dec 3, 2022
ABC NewsKathleen Calderwood
Hollywood Producer Fights to Save Daughters From Rare Disease
5:48
Hollywood Producer Fights to Save Daughters From Rare Disease
May 6, 2016
ABC NewsABC News
Ultra rare ‘one-in-eight billion’ genetic disease hits 3 Alberta siblings
2:58
Ultra rare ‘one-in-eight billion’ genetic disease hits 3 Alberta sibli…
Jun 23, 2021
Global News
Feeling incredbly loved by all those around us 🧡Here are just a few pictures we managed to caputure on Batten Disease Awareness Day 2025. A massive thank you to everyone who got involved and helped to raise awareness of such a rare yet devastating condtion. A huge thank you especially to our local community for once again turning our village orange, by doing this we know that questions will be asked as to why everywhere is decorated orange and this in turn will start converations regarding Batt
1:15
Feeling incredbly loved by all those around us 🧡Here are just a few pict…
6.8K views3 months ago
FacebookOllie's Army Battling Against Battens
4.2K views · 231 reactions | One of the first changes we noticed with...
1:26
4.2K views · 231 reactions | One of the first changes we noticed with...
4.2K views3 weeks ago
FacebookOllie's Army Battling Against Battens
Their biggest supporter 🧡 and advocate 🧡Today Monday 9th June is International Batten Disease Awareness Day. A day in which the worldwide community come together to raise the much needed awareness of this devastating condition.Children with Batten Disease are born seemingly healthy. Symptoms of CNL2 Batten Disease normally appear around the age of three years. Symptoms start with a speech delay, clumsiness/falls and then unexplained seizures.Batten Disease is an ultra rare neurodegenerative ge
Their biggest supporter 🧡 and advocate 🧡Today Monday 9th June …
12.3K views4 months ago
FacebookOllie's Army Battling Against Battens
0:30
459K views · 11K reactions | We didn’t know if we should post this...
780.1K views1 week ago
FacebookOllie's Army Battling Against Battens
Batten Disease
May 8, 2018
nationwidechildrens.org
0:06
13K views · 79 reactions | Sepsis happens when an infection you...
13.9K views1 week ago
FacebookCDC
14:34
Batten Disease: Spotlight on Stem Cell Research - A Father's Story
4.2K viewsJun 13, 2011
YouTubeCalifornia Institute for Regenerative Medicine
8:56
Understanding Broken Heart Syndrome (Takotsubo Cardiomyo…
15.1K viewsMay 6, 2021
YouTubeSouth Denver Cardiology
0:20
•• Absence Seizures... - CLN1 Batten Disease, Hope for a Cure
27.4K viewsFeb 10, 2021
FacebookCLN1 Batten Disease, Hope for a Cure
2:31
Understanding Gene Therapy for Battens Disease Progression
139.1K viewsJan 11, 2023
TikTokwhatif.itsizzy
10:32
Every Life - Mila's Story (Full)
81.2K viewsOct 16, 2019
YouTubeCharles River Labs
What is Batten disease? Doctor and family share insights on rare cond…
310 views7 months ago
YouTubeFOX 32 Chicago
9:29
6 Symptoms Of A Bad Ignition Coil
45K viewsNov 19, 2022
YouTubeMechanic Base
5:43
Our Family CNA Journey | Beth Fries and Mother Caring for Two C…
7.1K viewsNov 2, 2023
YouTubeSolace Pediatric Healthcare
3:45
12K views · 29 reactions | The only drug that treats children with a...
4.7K views1 week ago
FacebookChannel 4 News
3:46
IDENTIFYING BAD BUG BITES
15.6K viewsAug 8, 2019
YouTubeFOX 61
2:45
Batten Disease Explained
5.6K viewsAug 5, 2019
YouTubeCheckRare
2:10
Bats: White Nose Syndrome
13.2K viewsFeb 20, 2020
YouTubeUniversity of Michigan
2:27
The Dangers of Button Batteries
8.5K viewsJan 3, 2019
YouTubeSt. Louis Children's Hospital
2:24
Heartburn, Acid Reflux, GERD-Ma…
NATIONALLY RATED HOSPITAL
About this channel
YouTubeMayo Clinic
2:38
Leukemia: What are the symptoms? | Norton Cancer Institute
219.1K viewsDec 31, 2013
YouTubeNorton Healthcare
9:35
SIGNS THAT YOU HAVE A HEART DISEASE
908.9K viewsMay 23, 2021
YouTubeMEDSimplified
4:55
Christiane's Story — Batten Disease
NATIONALLY RATED HOSPITAL
About this channel
YouTubeTexas Children’s Hospital
3:18
Batten Disease and Gene Therapy
10.4K viewsSep 1, 2020
YouTubeASGCT
4:09
What is Myelodysplastic Syndrom…
NATIONALLY RATED HOSPITAL
About this channel
YouTubeMayo Clinic
9:44
Living with Juvenile Huntington's Disease
2.1M viewsMar 27, 2017
YouTubeHDYO
See more videos
Static thumbnail place holder