Connie Chandler is a columnist for BioNews and the Director of Family Engagement at the nonprofit organization, We Carry Kevan. She grew up in the foothills of North Carolina but now owns a home and ...

For a boy with SMA in China, starting Evrysdi (risdiplam) just 12 days after birth was safe and helped him reach key motor ...

Researchers studied 118 SMA type 2 patients and saw their RULM scores stayed higher than expected had their disease kept its ...

Drawing on some previous volunteer experience, columnist Sherry Toh takes on a new role at SMA News Today: forum moderator.

DySMA, to assess swallowing in children with SMA while undergoing treatment, was applied to healthy children to facilitate comparisons.

A doctor recently determined that columnist Brianna Albers had an airway collapse, but she'd been dwelling on something much worse.

Motor improvements in SMA adults treated with Spinraza paralleled a boost in electrical impulses along nerves that supply ...