Doctors think baby Lane's blisters are the result of a genetic skin condition. May 13, 2014— -- Brittany Weingart knew something was wrong with her son about a week after he was born when she ...

Epidermolysis Bullosa, also colloquially known as butterfly skin disease, a rare genetic condition that makes your skin very fragile. While the symptoms usually show up in babies or young children, ...

Most people may not know about epidermolysis bullosa (EB) — better known as “Butterfly Skin” — but it is hard to forget once you see it. EB is a painful, rare skin disease that affects one in 50,000 ...

Epidermolysis Bullosa, also known as "butterfly disease," is a rare genetic condition. This congenital disease lets the skin ...

Tucker Langford knows there’s going to be a parade on Saturday, but he doesn’t know that it will be for him. This week, he came home from Children’s Mercy for at-home hospice care, battling a rare ...

'Butterfly child' Skin as fragile as a butterfly's wings -- that's how children with epidermolysis bullosa are described and why they're often called butterfly children. The disease, of which there ...

In 2017, PEOPLE spoke to Brandon Joseph, who is living with the rare disease epidermolysis bullosa. While many patients die during infancy, Joseph is now thriving at 20 Brandon Joseph was born with ...