Doctors think baby Lane's blisters are the result of a genetic skin condition. May 13, 2014— -- Brittany Weingart knew something was wrong with her son about a week after he was born when she ...

Most people may not know about epidermolysis bullosa (EB) — better known as “Butterfly Skin” — but it is hard to forget once you see it. EB is a painful, rare skin disease that affects one in 50,000 ...

Tucker Langford knows there’s going to be a parade on Saturday, but he doesn’t know that it will be for him. This week, he came home from Children’s Mercy for at-home hospice care, battling a rare ...

In 2017, PEOPLE spoke to Brandon Joseph, who is living with the rare disease epidermolysis bullosa. While many patients die during infancy, Joseph is now thriving at 20 Andrea Pett-Joseph Brandon ...

Thousands of people in Kansas City, Mo., showed up to cheer up a child with a rare and incurable disease 3-year-old Tucker Langford suffers from a painful condition known as “butterfly skin,” which ...